Mukilteo team raises $12,000 for hemophilia
A Mukilteo family was the lead fundraising team at the first Hemophilia Awareness Walk on Oct. 26 around Greenlake with $12,000 raised.
The McNultys, known as Declan’s Army – their walk team name – raised almost $12,000 for the Bleeding Disorder Foundation of Washington’s first awareness walk.
Tony McNulty is the owner of the Papa Murphy’s in Mukilteo. His 4-year-old son, Declan, has severe hemophilia, with an inhibitor.
When the McNulty’s received Declan’s diagnoses, they vowed to support the cause of hemophilia.
Declan’s Army had about 50 walkers join them in support. The McNultys were the top fundraising team of the walk.
They lead by example in how they care for their son, raise critical funds and advocate for access to care.
The first Hemophilia Awareness Walk exceeded its goal of $50,000 by fundraising through the support of 39 teams. As the top fundraising team, the McNulty’s received the top fundraising award and started the walk procession.
Every team walked because a family member or friend has been affected by a bleeding disorder. Bleeding disorders, such as hemophilia and von Willebrand disease, impact the ability for a person to properly clot.
If a bleeding disorder is untreated, it can cause painful lifelong joint damage or life threatening internal bleeding.
Bleeding disorders are very rare. McNulty said there are only 1,200 people in Washington state with a bleeding disorder and just 700 in the state with hemophilia.
There are three families in Mukilteo affected by hemophilia, he said.
Bleeding disorders are also very expensive to treat. In one month, the McNulty family can easily rack up $8,000 in medical bills.
For more information on the Bleeding Disorder Foundation of Washington, go to http://www.bdfwa.org.
-Edited by Beacon staff